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Author Topic: GFI Charity Day 2019  (Read 214 times)


Offline lasue

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Re: GFI Charity Day 2019
« Reply #1 on: September 11, 2019, 02:12:22 PM »
THANK YOU Patch for posting these BEAUTIFUL PICTURES OF SEAN !! He looks like he's having a GREAT TIME !! LOVE THAT SMILE !!

Offline Clairette

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Re: GFI Charity Day 2019
« Reply #2 on: September 11, 2019, 08:09:47 PM »
  Excellent!

Offline patch

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Re: GFI Charity Day 2019
« Reply #3 on: September 12, 2019, 08:10:47 AM »
Quote
Had a great time yesterday helping to raise money for a fantastic charity @cureeb



https://www.instagram.com/p/B2TlJxfH7Jn/

Offline lasue

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Re: GFI Charity Day 2019
« Reply #4 on: September 12, 2019, 12:49:06 PM »
So EB AS SOMETHING TO DO WITH A PAINFUL SKIN CONDITION ??

Offline patch

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Re: GFI Charity Day 2019
« Reply #5 on: September 12, 2019, 01:09:43 PM »
So EB AS SOMETHING TO DO WITH A PAINFUL SKIN CONDITION ??



Quote
Epidermolysis Bullosa is a genetic skin blistering condition that affects over 500,000 people around the world, but very few people have heard of it. Those who have realise what a devastating impact it has on sufferers and their families. It is unrelenting in its pain and unrelenting in the distress it causes.
https://www.cure-eb.org/about-eb/


Offline lasue

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Re: GFI Charity Day 2019
« Reply #6 on: September 12, 2019, 05:39:03 PM »
VERY SAD. I think this was the same disease SEAN was raising money last time he participated in this event.