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Had a great time yesterday helping to raise money for a fantastic charity @cureeb
So EB AS SOMETHING TO DO WITH A PAINFUL SKIN CONDITION ??
Epidermolysis Bullosa is a genetic skin blistering condition that affects over 500,000 people around the world, but very few people have heard of it. Those who have realise what a devastating impact it has on sufferers and their families. It is unrelenting in its pain and unrelenting in the distress it causes.